Provide supportive services for children of mothers with ailing health related to HIV

Pillar: Respond
Goal: Improve access to care and improve treatment for 75% of PWH by 2025
Strategy: Provide supportive services for children of mothers with ailing health related to HIV.
Target: Ryan White HIV/AIDS Program Part D—Women, Infants, Children, and Youth (WICY) population

Key Activities:

High Priority and Disruptively Innovative

  1. Take children to their medical appointments, whether or not they have HIV. (Explore ride share, Uber, bus passes, etc.)
  2. Assist with medication administration.
  3. Act as surrogates (e.g., taking children to school and providing general care) if HIV(+) moms become incapacitated and incapable of providing care.
  4. Provide social support for children (“play dates,” programs, etc.).
  5. Obtain a list of children who are receiving extra support from school systems to link them to additional support that they might receive at home.
  6. Establish connections between mothers (peer support/buddy system, etc.).
  7. Support children’s education by providing access to virtual learning environments (particularly in response to the environment presented by the coronavirus pandemic).
  8. Identify and partner with respite care providers in Memphis area.
  9. Select 4 of the 39 respite care facilities in Memphis to potentially receive funds.
  10. Collaborate with Ryan White Part D for assessment of additional awards of funds to provide services for respite care for women, infant, children, or youth (WICY).
  11. Review and/or advocate for change in standards of care for RW Part D eligibility for persons tangibly affected by the experiences of PWH (WICY: Women, infant, children or youth; pursue the intricate work of changing policy so that services are extended to adult children of PWH).
  12. Support connections for RW Part D subrecipients for psychosocial support services and create groups specifically for caretakers.

Key Partners

Church first ladies, Headliners, Hope House, HRSA for RW Part D, LCHN, RW Part D funds w/ HRSA project officer, policy change, etc.), Organizations that provide support for women, Shelby County Schools, SisterReach, SJCRH

Potential Funding Sources

HRSA, Memphis Grizzlies, TN Medicaid/Medicare

Estimated Funding Allocation

  • Activities
  • Cost of respite care averages between $210-$405 per day w/ mean annual cost of $67,525
  • Food, supplies, etc. -$10,825
  • Locations for activities -$10,825
  • Staff to complete activities -$10,825
    Total: $100,000

Outcomes

(Reported annually, locally monitored more frequently)

  • # of respite care organizations supporting PWH families
  • # of virtual leaning site and participants
  • # of volunteers and “Acts as surrogates”

Monitoring Data Source